Based on interviews with almost a hundred activists, this book provides a detailed history of the struggle for disability rights in the United States. It is a complex story of shifts in consciousness and shifts in policy, of changing focuses on particular disabilities such as blindness, deafness, polio, quadriplegia, psychiatric and developmental disabilities, chronic conditions (for example, cancer and heart disease), AIDS, and of activism and policymaking across disabilities. Referring to the Americans with Disabilities Act as 'every American's insurance policy', the authors recount the genesis of this civil rights approach to disability, from the almost forgotten disability activism of the 1930s, to the independent living movement of the 1970s, to the call for disability pride of the 1990s.Like other civil rights struggles, the disability rights movement took place in the streets and in the courts as activists fought for change in the schools, the workplace, and in the legal system. They continue to fight for effective access to the necessities of everyday life to telephones, buses, planes, public buildings, restaurants, and toilets.
The history of disability rights mirrors the history of the country. Each World War sparked changes in disability policy and changes in medical technology as veterans without limbs and with other disabilities returned home. The empowerment of people with disabilities has become another chapter in the struggles over identity politics that began in the 1960s. Today, with the expanding ability of people with disabilities to enter the workforce and a growing elderly population, issues like longterm care are becoming increasingly significant at a time when HMOs are trying to contain health care expenditures.Author note: Doris Zames Fleischer has been a member of the Humanities and Social Sciences Department at New Jersey Institute of Technology since 1988. Frieda Zames, Associate Professor of Mathematics Emeritus at New Jersey Institute of Technology, has been a disability rights activist for over twenty-five years. Both sisters live in New York City.